Hello and welcome from the Project Patchwork team.

Project Patchwork is a social forum for women suffering from hidden conditions (chronic illnesses, mental health and physical aids unseen by the general public). We enable you to create your own profiles to connect with other women just like yourself. We believe that support through connection with your equals improves your knowledge of your condition and mental wellbeing.

Our Privacy Policy is here to show you how we keep you safe while using our site (“Project Patchwork”) also referred to as “us”, “we”. The privacy of your information is important to us.

At Project Patchwork safety is one of our pillars so we want to be completely transparent about how we keep you safe. Through the operation of this website, we will collect information about you. As a member we understand that your information may be sensitive as it involves matters regarding your health and wellbeing so we would like you to understand what information is being collected and why.

This privacy policy may change from time to time, we will email you if any changes are made so you are kept up to date. It is your duty to keep us informed of any personal data changes during your membership with us, as it is important all data we hold on you is accurate and current.


Your data means any information you provide to us during registration and contributions to your profile and the forum (see personal identifiable information). Personal information is which a person can be identified from but does not include data where the identity has been removed (see anonymous information)

We may collect, use, store and transfer the following data:
Identifiable Information: Full name, username, date of birth, gender.
Contact Information: Email
Technical Information: Cookies, IP address, login data, browser and version, time zone and location, browser plug-in types and versions, operating system and platform, devices.
Profile Information: Username (we will never collect your password), interests, health conditions and aids, location, profile picture.
Marketing Information: your email preferences and third party/communication preferences.


Your information is collected through the following means:
Direct – you provide us with personal and identifiable information by registering for a membership, providing a donation, purchase of products, request for marketing emails, enter competitions or giving feedback and testimonials.
Automated – through interactions on Our Site where technical information such as equipment, browsing actions and patterns are collected (see cookies).

We only use your information to contact you about the contract you are entering into by becoming a member of Our Site, where you consent to processing, when it is necessary for our legitimate interests (or a third parties) and your interests or fundamental rights do not override those interests, where we need to comply with a legal or regulatory obligation.

You have the right to withdraw from marketing emails at any time or change your communication preferences by contacting


Where we need to collect personal data by law, or under the terms of a contract we have with you and you fail to provide that data when requested, we may not be able to perform the contract we have or are trying to enter into with you (for example, to provide you access to certain parts of Our Site). In this case, we may have to cancel a product or service you have with us but we will notify you if this is the case at the time.


The only personally identifiable information we collect is that which you voluntarily provide. We will use this information in order to send you emails regarding offers, products, and services we think may interest you. We may also use it to conduct marketing research, and improve our products and services. When you submit personally identifiable information to us, you understand that you are agreeing to allow us to access, store, and use it for those purposes. We may share this information with third parties, but only those parties we trust to help us run our website and online business, and who agree to keep your information confidential. We may also provide this information if requested by law enforcement upon receipt of the appropriate documentation.


We collect certain technical and routing information about your computer, which is automatically submitted to us by your browser and does not personally identify you (Aggregated Data). This information may include browser type, operating system and CPU speed, your IP address, and search requests and results. We may also track your use of the site, including pages visited and the time spent on each page. The purpose of collecting this information is to provide you with the best possible service, to ensure the accuracy and efficiency of our search engine, and to measure the use of this 
website and to improve its content and performance. To the extent we share such information with third parties, it is not traceable to any particular user and will not be used to contact you.
However, if we combine or connect Aggregated Data with your personal data so that it can directly or indirectly identify you, we treat the combined data as personal data which will be used in accordance with this privacy notice.


This site uses cookies. Cookies are small data files that assign you a unique identifier. The collection of this information permits us to administer our site more efficiently and to provide a more tailored and user-friendly service to you. You may set your browser to prevent cookies from being sent; if you do so, this may limit the functionality of our site.


Third parties that link on this site may use cookies or collect other information when you go to their site. We do not control the collection or use of your information by these companies. You should contact these companies directly if you have any questions about their collection or use of information about you.


Through this website we may sell products and services. In order to purchase our products and services you will be asked to provide financial information. Typically this information will be collected by a third-party provider. In the event that the information is collected by us, we will not disclose your financial information to anyone unless required to do so by court order.


By becoming a member of Our Site you agree to us contacting you via email about your membership. At any time you may wish to opt-out of email communication. Though if you do so you will be agreeing to terminate your membership with us as we need to keep you updated about changes to our legalities and updates to the site. You may opt-out of email marketing and third-party correspondence without losing your membership privileges. If at any time you do not wish to receive offers, discounts, competitions and marketing e-mails from us or third parties we ask that you tell us. To opt-out of e-mail marketing contact


We take measures to maintain the security of the personal information you have provided to us. Even so, we cannot guarantee that all information shared through the internet will remain secure and you agree that we are not responsible for any unauthorized, inadvertent disclosure.
There may be circumstances where we are required by law to make a disclosure of your personal data to certain authorities (for example, where information is provided that suggests an ongoing or potential threat against a child or vulnerable person). We may seek to notify you first where such a disclosure of your personal data is going to be made unless we are legally prohibited from doing so.

We require all third parties to respect the security of your personal data and to treat it in accordance with the law. We do not allow our third-party service providers to use your personal data for their own purposes and only permit them to process your personal data for specified purposes and in accordance with our instructions.

In order to register with us and become an account holder, you will be invited to provide a password, a user name and an email. You are entirely responsible for maintaining the confidentiality of your password and account. If you forget your password, we may ask you to answer a specific question such as your username, date of birth or postcode. Furthermore, you are entirely responsible for any and all activities that occur under your account.

None of your personally identifiable information (i.e. email address, postcode/zipcode, date of birth) is ever visible to other users or third parties without your explicit consent. We encourage you to choose a non-identifiable username as this is visible to other users.

If you choose to use a username that may identify you, then certain information you choose to post may be identified as your data. This may also happen if you upload a photo of yourself, or a likeness of yourself, as a profile picture. Prior to posting any photo or likeness of you, choosing a username that may identify you, and/or post other information that may identify you, you should carefully consider whether you:

- wish to be identifiable on Our Site; and
- want to post information that may be capable of being linked to you.
When you do this is deemed as public data despite our site being a closed, members only forum, your information is viewable by other members who may use it to find you outside of our site. As such this information is deemed public.


We will only retain your personal data for as long as necessary to fulfil the purposes we collected it for, including for the purposes of satisfying any legal, accounting, or reporting requirements.

To determine the appropriate retention period for personal data, we consider the amount, nature, and sensitivity of the personal data, the potential risk of harm from unauthorised use or disclosure of your personal data, the purposes for which we process your personal data and whether we can achieve those purposes through other means, and the applicable legal requirements. Generally, once an account has been closed we will process your data only for limited purposes, and would generally look to delete or anonymise data on inactive accounts after 5 years.

You may request your data to be removed at an earlier date by contacting and stating ERASE DATA in the heading.


Under certain circumstances, you have rights under data protection laws in relation to your personal data. Please click on the links below to find out more about these rights: request access to your personal data or correction of data, erasure, objection of processing, restriction of processing, transfer of your data, and right to withdraw consent. If you wish to exercise any of the rights set out in this section, please email us at the link provided.

You will not have to pay a fee to access your personal data (or to exercise any of the other rights). However, we may charge a reasonable fee if your request is clearly unfounded, repetitive or excessive. Alternatively, we may refuse to comply with your request in these circumstances.

We may need to request specific information from you to help us confirm your identity and ensure your right to access your personal data (or to exercise any of your other rights). This is a security measure to ensure that personal data is not disclosed to any person who has no right to receive it. We may also contact you to ask you for further information in relation to your request to speed up our response.

We try to respond to all legitimate requests within one month. Occasionally it may take us longer than a month if your request is particularly complex or you have made a number of requests. In this case, we will notify you and keep you updated.


This site is not meant for children under the age of 16 years old. We do not knowingly collect information pertaining to or market to children under the age of 16 years old. In registering as a member you are acknowledging that you are aged 16 or above. If we become aware that a child under 16 has attempted to set up a profile we will take steps to remove the profile and delete the child’s account.


Company customer lists and information are considered business assets and as such, in the event that we merge with another entity or if we sell our assets to another entity, our business assets, including our customer lists and information, would be transferred to that entity.
If you do not wish the personal information you provide to be subject to this possibility, you should deactivate your membership by notifying and including “DEACTIVATE” in the subject line or by deleting your account in your account settings in Our Site.


Owner and Founder: Wendy England
Should you have questions regarding this Privacy Policy email

LAST UPDATED: 24/07/2018